2 Specialists Down, 1…or 2 To Go

It’s official. It’s a relief to know that I have two diagnoses and two treatment plans now.

The kidney biopsy results apparently led to both diagnoses.

IgA Nephropathy

It’s an autoimmune kidney disease, as I said. The Nephrologist said the prognosis is very good. We have caught it very early — though probably I had it 4 years ago when I saw that Nephrologist who didn’t really run any tests and just dismissed me so I could have caught it even sooner. My kidney functions are still excellent and don’t appear to be damaged yet. She is changing my blood pressure medication to one that will treat both my blood pressure and the IgAN. Unfortunately, this will have to be monitored for the rest of my life at the very least annually if not quarterly to watch for deterioration of my kidneys. Worse case senarios are total renal failure and kidney transplants.

Fibromyalgia

The Rheumatologist is now convinced that my consistantly high SED rate is the result of the IgAN as he’s eliminated everything else it could be in his arsenal and the kidney biopsy proved it’s not vasculitis. He’s given me the official diagnosis of Fibromyalgia and is requesting that my GP increase my sleep med dosage (b/c she prescribed it) and is prescribing water exercise therapy, which I now need to see where my insurance will cover sending me to. Again, I have to go back in 3 months. Unfortunately because of my kidneys, I cannot take any alleve, advil, or asprin to help with the soreness in my muscles or the pain in my hands.

The frustrating thing is that for the most part, there’s not a lot to change from what I’m doing. Just make sure I get more and better sleep at night and get some exercise, preferably water-based since regular exercise aggrevates the muscle pain. Weight loss will also help but without exercise I possibly can’t lose any more without starving myself.

Next Up

I’m seeing a GI specialist next week finally who I’m supposed to discuss the lack of Gallbladder surgery and possible IBS and acid reflux issues. Good timing as the Previcid seems to be no longer working on the acid reflux.

And the GP wanted to wait until after the kidney biopsy to send me to some sort of pulmonary work-up regarding that persistant cough I’m still having, though not as bad or frequent. I’ve got to try to see her next week about a flu shot too. Oy.

So, there’s good news and lots of moving forward finally! Yay!

tags: IgAN, fibromyalgia, GI specialist, kidney biopsy, SED rate, rheumatologist, nephrologist, blood pressure, wellness

3 comments

1. on November 2, 2006 at 3:09 pm

   Tamara said:

   Congrats, that has to be a relief, even though there isn’t much new to try, as you said. Maybe just knowing will at least ease your anxiety about your health issues. Hope the med changes will help as well!

2. on November 2, 2006 at 4:47 pm

   Tod said:

   I’m sure you feel much better just knowing what the problem is. I know I did when I was eventually diagnosed.

3. on February 5, 2007 at 2:10 pm

   othurme said:

   I hope all goes well with the IgaN. I’ve had it for 25 years. Good to hear your kidney function is still normal.

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